Port Richmond Girl Suffering From Rare Disease Needs Treatment - Fox 2 News Headlines

Port Richmond Girl Suffering From Rare Disease Needs Life Saving Treatment

Posted: Updated:
PORT RICHMOND -

This 7-year-old will touch your heart. She's suffering from a rare disease and needs life-saving treatment.

She has seizures and a series of mini-strokes. FOX 29's Dave Kinchen shows how you can help.

Kicking the soccer ball around with her dad 7-year-old Jenna Bayona looks like your everyday active kid that loves the outdoors, but violent seizure-like episodes can derail all of this fun. The last attack happened at school last month.

"It's scary. Real scary. The one time her whole left side of her face drooped. The nurse had to run into the hallway to help her, her whole legs went numb. She actually had to pick her up and put her on the table for a while," said Kristina Scott, Jenna's mother. 

Jenna was diagnosed with a rare illness called Moyamoya where certain brain arteries become blocked restricting blood flow.

"They said it means "puff of smoke" in Japanese and that it's more common in Japan," said Kristina said.

It has left this soccer-loving girl to be sidelined suffering several mini-strokes requiring many doctors' visits.

She has to take aspirin and blood pressure pills every day too. Doctors say brain surgery is essentially the only treatment available. They found a specialized team at Boston Children's Hospital, but the problem is cost.

"We have $500 a night co-pays for every stay. It's basically travel back and forth and being up there for the week. Hotel, stuff like that.

They started a page on gofundme.com looking to raise $2,000 to get her to Boston and have only raised a few hundred dollars so far.

"With everything being so last minute we really didn't have a chance to get everything together. They can't even give me any type of bill yet," Kristina said.

Jenna and her family are scheduled to visit BCH at the end of this month. If you would like to help them get there, log on to her facebook page.

  • Local NewsMore>>

  • PECO Investigating Gas Odor in Phila Region

    PECO Investigating Gas Odor in Phila Region

    Saturday, August 30 2014 10:15 PM EDT2014-08-31 02:15:46 GMT
    A spokesperson for PECO confirms to Fox 29 News that crews are trying to find the source of a gas odor that has resulted in hundreds of calls to PECO on Saturday.About 400 calls have been placedto PECO as of 4pm Saturday; that is an elevated number of calls than a normal day, the spokesperson says. Crews that are trained in gas odor response are spread throughout the area to try to pinpoint the source of the odor. Reports of gas odors have been made by customers in Delaware, Montgomery, Chest...
    A spokesperson for PECO confirms to Fox 29 News that crews are trying to find the source of a gas odor that has resulted in hundreds of calls to PECO on Saturday.About 400 calls have been placedto PECO as of 4pm Saturday; that is an elevated number of calls than a normal day, the spokesperson says. Crews that are trained in gas odor response are spread throughout the area to try to pinpoint the source of the odor. Reports of gas odors have been made by customers in Delaware, Montgomery, Chest...
  • Students Prepare To Return To School With Free Supplies

    Students Prepare To Return To School With Free Supplies

    Saturday, August 30 2014 6:15 PM EDT2014-08-30 22:15:25 GMT
    We all know Labor Day Weekend is the unofficial end of summer, but it also mean something else...back to school.
    We all know Labor Day Weekend is the unofficial end of summer, but it also mean something else...back to school.
  • Summer Heat Returns

    Saturday, August 30 2014 4:11 PM EDT2014-08-30 20:11:25 GMT

    The rest of the holiday weekend continues to look warmer and unsettled. Shower and thunderstorm chances increase late Sunday and Labor Day.

    The heat and humidity will continue to expand Sunday into Labor Day. There is a risk of scattered showers and thunderstorms both day.  Best chance will be in the afternoon and evening. 

    Sunday (88/69): Clouds/Storm

    Monday (90/71): Clouds/Storm

    Tuesday (92/72): Clouds/Storm

     

     

Powered by WorldNow

WJBK-TV | Fox 2
16550 West Nine Mile Rd.
Southfield, MI 48075

Main Station: (248) 557-2000
Newsroom: (248) 552-5103

Didn't find what you were looking for?
All content © Copyright 2000 - 2014 Fox Television Stations, Inc. and Worldnow. All Rights Reserved.
Privacy Policy | New Terms of Service What's new | Ad Choices